30 Things About My Invisible Illness

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Living with an Illness ME Personal Blog Videos

We all experience our illnesses individually and we have our own challenges and achievements. But I do find that when we start to share our experiences and stories, we begin to see that we’re not all that different from each other. This often gives us some much needed solidarity and comfort. I haven’t really talked specifically about my own story, and I will expand on this at some point, but I had been planning to complete the ’30 Things About My Invisible Illness You May Not Know’ questionnaire by Invisible Illness Week for quite some time now.

So, after a really awful start to 2016, I wasn’t in the mood to tackle a big topic for this week’s video. Instead I decided I would finally complete the questionnaire. I actually really enjoyed doing it because it helped me to understand how far I had come in the years since I first became ill. I would urge others to also complete this questionnaire. You don’t have to do it in a video format like I did, but instead you can write out your answers and post them on your blog. If you do that, please drop a link in the comments section so we can all check it out. If you don’t have somewhere to post your answers, I’m happy to post them on this site or there is another option on Invisible Illness week.

Here’s the video – if you want to subscribe to the channel, either click on ‘YouTube’ in the bottom right hand corner of the video and it will take you to YouTube where you can subscribe, or click this link and it will take you to my YouTube channel where you can also view the other videos I have made. Thank you so much for all the support and comments.

  • Karen davies

    Hi just discovered your blog after being recently diagnosed with cfs they think. Even the doctor said it is mind over matter. Feel my future has been taken away even though am advanced age of 53. All I want to do is lie on the bed all day and search Internet for cures. Don’t even begin to understand how you feel after so many years but good to know there is a community out there

    • Jay

      Hi Karen! 53 is not advanced age and of course you feel this way. The whole ‘mind over matter’ thing is one of my pet peeves because every single person with a chronic illness that I know of anyway, would do just about anything not to be ill. I do try and share my thoughts and feelings about this crazy journey I have been on with my health, so hopefully there will be something there that resonates with you. Yes, there is definitely a community and we take care of our own. We may be ill, but we try to make sure that we’re there to prevent anyone from falling or feeling too alone. Thank you so much for your comment.

  • Karen davies

    Thank you for your replies, it is good to know that there are people who understand