Category Archives: Videos

The Problem with Positive Thinking

Ever since I started to make these videos I planned on talking about this awful thing we call positive thinking. Finally I managed to not just make one video on the topic, but two. Of all the responses and comments the chronically ill get, “Be positive” has to be the one that annoys me the most! You see, I used to be a fundamentalist positive thinker – I know the mind-set and even though at the time I believed every stupid word that came out of my mouth, I now know the damage I did to myself and to others. As far as I can tell, being a positive thinker didn’t really do anything for me and it certainly didn’t prevent me from getting ill.

In the first video I look at what positive thinking should be and what it has become in our modern society. I also take a general look at why it is so flawed and is really the worst possible way we can choose to govern our emotions.

In the second video I look at the results of several studies which not only show how bad positive thinking is for us, but also the benefits of negative thinking.

Sources:

Included here are the studies I quoted in the second video.

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30 Things About My Invisible Illness

We all experience our illnesses individually and we have our own challenges and achievements. But I do find that when we start to share our experiences and stories, we begin to see that we’re not all that different from each other. This often gives us some much needed solidarity and comfort. I haven’t really talked specifically about my own story, and I will expand on this at some point, but I had been planning to complete the ’30 Things About My Invisible Illness You May Not Know’ questionnaire by Invisible Illness Week for quite some time now.

So, after a really awful start to 2016, I wasn’t in the mood to tackle a big topic for this week’s video. Instead I decided I would finally complete the questionnaire. I actually really enjoyed doing it because it helped me to understand how far I had come in the years since I first became ill. I would urge others to also complete this questionnaire. You don’t have to do it in a video format like I did, but instead you can write out your answers and post them on your blog. If you do that, please drop a link in the comments section so we can all check it out. If you don’t have somewhere to post your answers, I’m happy to post them on this site or there is another option on Invisible Illness week.

Here’s the video – if you want to subscribe to the channel, either click on ‘YouTube’ in the bottom right hand corner of the video and it will take you to YouTube where you can subscribe, or click this link and it will take you to my YouTube channel where you can also view the other videos I have made. Thank you so much for all the support and comments.

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Worst Things to Say to a Person Living with a Chronic Illness

One of the most difficult aspects of living with an invisible chronic illness like ME is the fact that people don’t understand exactly how ill you really are or they do and give the most unhelpful advice. This is something I have experienced myself and I’ve heard other sufferers say so many times.

But most of us don’t complain about it or even pull up those people even when they’re saying the most outrageous things. This is for a number of reasons from being too ill to muster the energy to do so, or just not feeling brave enough to say anything.

So I was thinking about Christmas and the holidays and how many of us must have had to interact with friends and family who just don’t understand. How many of us must have heard judgemental comments or advice all well-meaning and given in a helpful spirit, but which have left us feeling even worse?

Yes, we sound whiney and ungrateful when we complain about these comments, but that’s only because healthy people don’t understand how devastating their words can be. So to try and explain this I made this the subject of my latest video titled ‘Worst Things to Say to a Person Living with a Chronic Illness’. Please be sure to like the video and subscribe to my YouTube channel. I will be uploading every week now and I am taking requests, so if there is an aspect of living with a chronic illness that you want me to cover or even rant about, let me know and I will be happy to oblige.

Let me know in the comments below or even better on the comments section of the video, what are the worst things people have said to you. How did it make you feel to hear such things? As always thanks for all the support and encouragement – it’s what keeps me going and making these videos.

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