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Daily ME/CFS Ghost

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Personal Blog Writing about Illness

I’ve decided that I’m going to try and post every single day on The ME/CFS Ghost. Now, those of you that also have a chronic illness will fully realise that some days it’s all you can do to turn over in bed, and I know that too. The thing is I started this site two years ago and I’ve really not known what to do with it. Do I try to write informational pieces about ME? Well, there are plenty of websites that can do a much better and thorough job of explaining symptoms than I can, so that’s not really the direction I want to go in. Do I try to make people feel better about being ill? I think that is totally unrealistic as a goal as well as being rather high-minded. We’re ill people and how many times have we wanted to deck people that have tried to jolly us into feeling better?! So, I’ve been writing the odd realistic piece about my thoughts and experiences, but as singular pieces without any kind of context, they can come across as totally negative and bleak.

Today I was looking through the site and reading through older posts and I realised that the site was meant to be about my life with ME. I remember when I first got ill, not only was it an alien concept to me that anyone else in the world could be feeling as I did, but when I realised there were others out there, I wanted to know how they lived day to day. This is meant to be my life with ME, so let me try to show you a piece of that.

So, let me stop here, and get started on the first post! I swear, I’m so used to making empty promises and goals, but I really hope this one sticks!