Ill But Still Trying for ME Awareness

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Living with an Illness ME Writing about Illness

Karina Hansen has been held prisoner since February 2013.

It has been over a month since I last posted here and that’s because I have been very ill but I’ve still been trying to write, especially as May was ME Awareness month. I wrote a number of posts on Bubblews about ME and living with this illness. I’d be lying if I said it has been easy; my worsening symptoms have not helped with my mood, but we can but try.

I had considered taking a break from writing about ME, but I know that it is too important to stop entirely, so I am going to continue as much as I can. I just hope I have the energy to visit my peaceful, calm places to recharge.

I think the most important article I wrote was the one about Karina Hansen and I would urge you to read her story and to sign at least one of the online petitions. You could help to save her life. Here is that article:

Help Save Karina Hansen

I’m going to ask, no, beg that you read this article in its entirety. A young woman’s life depends on it and the health of so many others too, so please just spare a few minutes. I’m going to try and cram as much information into as few words as possible. Karina Hansen, the 24 year old pictured here, is being held in a hospital against her will and the will of her family. ME is a neuro-immune illness and you can see links below to articles describing the symptoms; Karina suffers from severe ME and has been bedbound since 2009.

In February with the help of police and social workers, Karina was forcibly removed from her home by doctors. She called her family members for help, but they were not allowed to help. Imagine that Karina is your daughter or your sister and people break into your home and remove her as she calls for help. No-one tells you where she is being taken, or why, and you are not given any paperwork or a warrant. All you receive is a phone call telling you that Karina is at Hammel Neurocenter and that someone will call daily with an update but that no-one can see her for 14 days. It has now been over 3 months despite her family going to the center to see her, her parents were not allowed to visit. Her sister was permitted a short supervised visit, and she reported that Karina was non-responsive and did not appear to recognise her. Karina’s sister is a nurse and one of her carers and in her opinion Karina’s health has deteriorated significantly since she has been taken.

There is a much longer, more detailed account of this story and you can read it here: here but the fact is that this has not happened in some out of the way country, but right here in Europe, in Denmark. Even though the World Health Organisation classifies ME as a real biological illness, the Danish medical establishment ignore this and work on the basis that ME is a functional disorder, which basically means if you are in Denmark and have ME it is all in your head. The center that Karina has been taken to has never treated a person with severe ME and prescribes Graded Exercise Therapy and Cognitive Behaviour Therapy as a treatment plan. Quite frankly these could kill Karina Hansen, as happened in the UK with Sophia Mirza.

This girl’s parents are begging for help and ME organisations around the world are trying to bring attention to Karina’s plight. Her parents have tried to get legal guardianship of their daughter, but this is being ignored and they have been in contact with a member of the Danish parliament, but so far they have received no help. If you are a journalist, don’t take my work for it or the words of the other campaigners check this situation out for yourself. The situation is becoming increasingly dire every day because even though they receive phone call updates from the staff where Karina is being held the reports often conflict so no-one knows what state she is really in.

There is an online petition and a letter writing campaign asking the Danish government to stop holding Karina a prisoner and to ensure the medical staff in that country receive proper training on how to treat ME sufferers. Even if you cannot write a letter, I would really appreciate if you could sign the online petition. It can be found here.

I know I have left out so much information, but I don’t want to put people off by making this too long. If you have any questions please ask me below and I will try to answer them.

Can you believe this is happening in modern Europe?