Living with a chronic illness like ME/CFS can make you feel, not to mention look, like an extra from a horror movie. There are days when I'm a ghost haunting the house, or times when I'm a zombie shuffling along. This is my life with ME/CFS.
  • ME/CFS book review: Verity Red’s Diary…

    …A Story of Surviving ME by Maria Mann ‘Verity Red’s Diary’ is one of those books that will always stay close to my heart. I will never forget the way it made me feel or the way it resonated so exactly with the way I was feeling. At the time, I had been suffering from […]

  • Voices from the Shadows

    A Powerful Story of Courage in the Face of Tremendous Neglect and Abuse “I hope you are not saying that (ME)CFS patients are not as ill as HIV patients. I split my clinical time between the two illnesses, and I can tell you that if I had to choose between the two illnesses I would […]

  • What’s in a name? ME vs CFS

    Why ME vs CFS? There is much debate about the names ME (Myalgic Encephalomyelitis) and CFS (Chronic Fatigue Syndrome) and the other labels our symptoms are given. There is also much debate about what ME should be called and why it has come to be known as CFS and I would refer you to ‘What […]

  • Why Am I Writing About ME/CFS?

    When ME/CFS bulldozed its way into my life over a decade ago, I was totally unprepared for the changes it forced on all areas of my life. There were times when I coped better than at other times, but whether I was feeling Denial or Anger, whether I was Bargaining or Depressed and even when […]