The ME/CFS Ghost » Blog Archives

Tag Archives: 2015

What Do You Want in 2016?

The months seem to have rushed by since August. In almost a decade and a half of chronic illness I’ve found that even though each day will often seem to crawl by, with me crawling right behind it, the weeks, months and years tend to fly. Luckily (or is that unluckily? I have yet to figure that out) I have been extremely busy since August and so much, too much even, has been happening in my life. One thing hasn’t changed though; I still seem to be crawling behind. As I’ve not been around much I just wanted to let you know what is happening, and what you can expect. Also, I want to know what you want to read and see from me! Are there any topics you would like me to cover? Maybe there’s an issue that needs explaining, or perhaps you’d just like me to vent about something that probably bugs a lot of us, or there might even be something wonderful that you’ve found for which you are grateful. Let me know and I will do my best to cover that topic.

So where have I been and what have I been doing? I had some major changes take place in my life over summer and I’ve been adjusting to these. I was prepared for anything to happen. I didn’t want to feel stressed out about any problems that could arise nor did I want to create issues where there weren’t any, so I took on an attitude of “Just let it come; whatever happens now, I will deal with it.” I am thrilled to report that health has actually been better than it has been for a while and I’ve been happy. I think a major reason for this is that even though I had an initial panic to get moving and to do something…anything even, I actually slowed right down and gave myself the time and space to get my bearings and to make sure I was OK. I looked after myself in a way I probably hadn’t for a very long time.

I’ve loved relating to myself as an individual again. I’ve always been very independent, but I guess when you’re in a relationship and especially when you’re living with someone, you inevitably will define yourself in the terms of that relationship. There’s nothing wrong with that. But sometimes it is nice to just get to know who we are and where we are in the whole scheme of things and I have definitely been doing that.

Ah, the YouTube channel. Yes, I know I put up one video and then disappeared. This was precisely what I did not want to do. I had been so organised and prepared to create videos in advance so no matter what happened with my health, there would definitely be a video out each week. Well it would appear that life had other plans for me! First I was without internet and then I had an awful chest infection. I also have had much upheaval and change. So by the time I was ready to begin uploading again, the Holiday madness had begun. I decided I would keep working on the videos and start posting them in the New Year and that is exactly what I will do. I created a short channel update video explain this:


The videos really do take up a lot of time and effort BUT they are worth it because of the response I have had from other sufferers. The way things are in my life at the moment I have to juggle a lot of balls just to survive and my life is far from certain. But one thing is certain, I will continue to make these videos for as long as possible and furthermore, I look forward to your suggestions and requests on the types of topics you would like me to cover.

Happy New Year!!

OK that’s all for now my lovelies! We survived 2015, now let’s go deal with 2016! We can do it together and even from the sanctuary of our beds.

Published by:

First Post of 2015

Plans for a New Year

Today I was tempted to just post a piece I had written last week which I didn’t get around to uploading. Yes, I was very tempted, but I didn’t want my first post of the new year to be a leftover from last year. You will be seeing that one tomorrow (c’mon, I’m not going to waste it?!). I hope everyone has had a good start to 2015, but I know that if you’re anything like me, you’re probably struggling after all the over-exertion of the last few weeks. I am so ill at the moment, I can barely see straight, but I can’t say I regret a single minute of all the activity, talking and laughing that has left me totally wrecked. Of course, the longer I’m left feeling this way, the more that feeling of contentment will wane, but for now, I’m good.

I’ve been thinking a lot about what I want to do in 2015. I don’t really make resolutions, but I do assess where I’ve been, what I’m doing right now and where I want to be. I started The ME/CFS Ghost in the hopes of sharing what my life with ME is like. That means writing about how I feel, what I do; the good, the bad and the ugly. So, I’m going to be sticking to that, but I’m sure you’ll see more of a militant side to me because that’s honestly how I’ve been feeling. I’m not angry, I actually feel great inside, but I am much more confident in what I know and passionate about sharing that with others. I’m also in the process of writing a book about living with a chronic illness. I began planning it a while ago, but I haven’t had the time, health or energy to really work on it.

Going forward, I’ll still be attempting to post every week day, health allowing of course. Tomorrow you’ll see the post which is almost a part two of the mini rant I had in The Fault in Our Stars. On Wednesday I’m hoping to talk about ME adrenaline surges, because that’s what landed me in my current mess, but it all depends on if I can get my brain to engage. Thank you all for joining me in 2015, let’s make it the best one that we can.

In the past I’ve talked about how I have certain songs that get me through the day. Today’s song is Lynyrd Skynyrd’s Free Bird – guitar solo all the way! Enjoy and I’ll see you tomorrow!

Published by: