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Over-the-Counter ME Treatments Follow Up

OTC Treatment Options for Patients with ME
This is a follow up to the poll that I posted a while back. If you haven’t already seen it and answered the questions then I would really urge you to do so by visiting Over-the-Counter ME Treatments Poll. Even if you have already taken the poll, you can go back and view the results of what other people said.

I know a lot of you have been wondering how I came up with that list of treatments. A friend who is also an ME sufferer sent me the above list as her friend, another ME sufferer, was given that list of OTC treatment options by an ME specialist at Sutton hospital. My friend and I were pretty appalled by the list. Yes, there are treatments listed on there that people may find helpful, but it’s still shocking that you’re referred to a specialist and they give you something like that. You can join any ME forum and get a similar list in just a few minutes and not have to wait to see a specialist. I must admit, that I don’t know the full treatment plan that the lady who is attending the hospital is receiving, so it’s not really fair for me to make assumptions about the medical treatment being offered to her. So I’ll stick to that one sheet of paper.

My first objection may sound really petty, especially considering the name of this blog, but ‘CFS/ME’ seemed a bit unnecessary, when ‘ME/CFS’ is most commonly used. It’s like the ME is just grudgingly tagged on to the end of CFS. Especially as further down the sheet, only ‘CFS’ is used to refer to the illness.

I have my own thoughts about the treatments suggested but these are based on my own experiments. Going by the answers people gave to my poll, the majority of the people that answered had similar results as me, but some people evidently found some help and relief where I didn’t.

The one treatment that I was really interested to try especially as I have problems with sleep disturbances in summer is Phenergan, but after going through the entire list with my pharmacist I was told that it is only available with a prescription.

So, what do you think, both about the treatments that are suggested and the fact that this sheet is being given to patients. Do you think it is a good basic guide for ME patients? The lady who was given this sheet had already tried most of them as she has been ill for well over a decade. Do you think it would make a difference to those that are newly diagnosed or is it helpful for all patients? Are there any Over-the-Counter ME Treatments that you would really recommend or dissuade people from trying?

As always, I am not doctor and these are just my own opinions, so please speak to your doctor before trying/not trying any of these.

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Over-the-Counter ME Treatments Poll

Most ME sufferers will try just about anything to help with their symptoms. But are all treatments effective? What follows is a specific list of over-the-counter ME treatments and readily available therapies. Please note I am NOT recommending any of these or suggesting that any are suitable for the treatment of ME. The point of this poll is to see who has used what or would consider using them and how effective users have found these to be. I don’t want to say too much about where I got this list from or who compiled it at this point, as I don’t want to influence any answers. I promise that I will be back with more information at a later date.

It is a very straight forward poll and will only take a few minutes to complete. It is made up of two questions per treatment/therapy. The first of these asks if you have or would consider using the treatment and the second is only to be answered by those that have used the treatment. Don’t forget to hit ‘Vote’ after each question, (this also means you can answer as many questions as you are able to at any one sitting.) You can also view the results up until that point immediately after you have added your answer.

Have you used L-Carnitine for Muscle Function?

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If you have used L-Carnitine, did it help with your Muscle Function?

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Have you used D-Ribose for Muscle Function?

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If you have used D-Ribose, did it help with your Muscle Function?

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Have you used Coenzyme Q10 for Muscle Function?

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If you have used Coenzyme Q10, did it help with your Muscle Function?

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Have you used Magnesium for Muscle Function?

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If you have used Magnesium, did it help with your Muscle Function?

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Have you used Echinacea to aid Immune Function?

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If you have used Echinacea, did it help with your Immune Function?

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Have you used Ginseng to aid Immune Function?

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If you have used Ginseng, did it help with your Immune Function?

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Have you used Sublingual Vitamin B12 to aid Immune Function? (Not injections prescribed by your doctor.)

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If you have used Sublingual Vitamin B12, did it help with your Immune Function?

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Have you used Phenergan to aid with Sleep Disturbances?

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If you have used Phenergan, did it help with Sleep Disturbances?

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Have you used Melatonin to aid with Sleep Disturbances?

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If you have used Melatonin, did it help with Sleep Disturbances?

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Have you used N-acetylcysteine?

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If you have used N-acetylcysteine, did it help?

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Have you used Tocotrienol?

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If you have used Tocotrienol, did it help?

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Have you used Mindfulness Meditation to aid with Deep Relaxation and/or Pain Management?

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If you have used Mindfulness Meditation, did it help?

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Have you used Abdominal Breathing to aid with Relaxation and Pain Management?

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If you have used Abdominal Breathing, did it help?

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Have you used Graded Exercise Therapy?

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If you have used Graded Exercise Therapy, did it help?

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Thank you for taking part in this poll. As promised, I will be back with more details about why I asked these questions. I’m sorry for being so deliberately vague, but I really want to get a more representative viewpoint before I go ahead and reveal more. You may be surprised by where I got this list from and who has compiled it, so be sure to check back.

In the meantime, please feel free to share any further thoughts about these or other over-the-counter treatments in the comments section.

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